Purpose:
In 2009, the Victorian Paediatric Integrated Cancer Service (PICS) established a Long Term Follow-up Program (LTFP) for survivors of childhood cancer. To date, 329 multidisciplinary clinical assessments have been completed for new clinic patients. All new patients are provided with a ‘patient passport’, consisting of health information, summary of treatment and guidelines for future investigations. Evaluation of the patient experience is critical to ascertain the consumers’ perspective of the service and to direct future development of the service.
Method:
A mixed method, qualitative and quantitative survey was developed to obtain consumer feedback regarding the clinic structure, the patient/family experience and their perceived value in attending the LTF clinic. The survey was developed by the PICS and the LTFP and was reviewed by the CCC Parent Advisory Group, prior to submission to the RCH Ethics and Research Department.
Results:
To date, 227 surveys have been sent to participants of the LTFP with a response rate of 31% over the 4 weeks survey period. Results indicate that the LTF clinics are regarded as valuable and a required resource by consumers. Summary results will be integrated into future service planning and capacity-building. The evaluation of the survey and anticipated service-delivery modifications will be presented.
Conclusion:
In line with best-practice quality cycles, a consumer review of the LTF clinic has occurred. The LTFP service delivery will be modified to reflect consumer feedback, ensuring a progressive and consumer-focused service that meets the needs of the survivor of childhood cancer and their family.